A

A

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Hi, I'm A, 27yrs-old divorced full-time mom raising my beloved daughter struggling with mental and physical disability. It's caused by two untreatable gene mutations CHAMP1 and STXBP1. We live in Poland, renting a really small apartment in one of the biggest cities. I'm doing my best to give my kid what she needs, trying to make her happy. She looks like she really is doesn't she? :)
I'm gonna tell you about our life, about E's untreatable gene mutations, social support in Poland, education system, parents support...
It's not easy to take care of your daughter when your socials are about £500 (~680$) per month.
We'd really appreciate your support and sub. I'm just trying to ensure my E's future in case of anything... As I'm the only parent she has and we have no one helping us.
Hope to see you in here!

location_on Europe, Poland

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