Hi, I'm A, 27yrs-old divorced full-time mom raising my beloved daughter struggling with mental and physical disability. It's caused by two untreatable gene mutations CHAMP1 and STXBP1. We live in Poland, renting a really small apartment in one of the biggest cities. I'm doing my best to give my kid what she needs, trying to make her happy. She looks like she really is doesn't she? :)